Wednesday, Jun 28th

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Workpackage 08

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Linking GAMBA to society through science-society dialogues on chances, risks and ethical aspects.

WP leader: SCID (Members)

Partners involved: TUM (Members), ARI (Members), NUI Galway (Members)

A key element of this project is the involvement of members of society into the research on innovative treatments of arthritis. We will set up a two-way dialogue at eye level between patients / citizens and leading European scientists in three European countries. In the so-called patient and citizen panels participants are first introduced to the field of innovative research on arthritis through expert presentations during the panels and a hearing with experts selected by the citizens in the citizen panel. In a second step, participants negotiate about this input and then compile patient-/ citizen-reports supported by independent facilitators. Therefore, the main objective of this work package is to discuss the chances, risks and ethical aspects of innovative arthritis treatments with lay people and to develop communication strategies to provide clinics, interested companies as well as the media and a broader public with balanced, professionally developed and scientifically sound information. Two main questions will be answered by the dialogue measures: 1. What do lay people (patients / citizens) want to know about GAMBA? What are their associations with GAMBA? What specific topics are they interested in from their special point of view as concerned patients / interested citizens? 2. What are lay people’s recommendations to the scientific world, to regulators, industry and media regarding the chances, risks, ethical/social aspects of GAMBA?

With a gender workshop we will raise awareness for the participation of women in science, especially in leading positions, as at graduate student level there are often more women than men, but in leading positions there is a male majority.

Confidential communication between members of this workpackage:  Workpackage Discussion Room (Member Area)

Public communication between members and patients / citizens: Patient and Citizen Panels Discussion Room

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